Autism and Law Enforcement

autism law enforcement

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All autism parents feel anxious about their children in the community, knowing they could be perpetrators, victims of crime, or wanderers.  Far too often, criminal actions on the part of Autism Spectrum Disorder (ASD) individuals are provoked by school administrators and/or police officers not understanding the signs and manifestations of autism. A recent case in point is the ridiculous incarceration of a young man selling packs of sugar at school.

Common reasons for ASD people to run afoul of the law include: 

• Deliberate exploitation by others 
• Aggressive behavior brought on by disruption of routine, sensory overload, etc. or the police encounter itself. 
• Anti-social behavior due to their lack of knowledge of reading and following social cues 
• Obsessions (such as a computer programming obsession leading to hacking charges) 
• Fleeing the scene of the police encounter 

While ASD people as a group commit no more crimes than any other group, they have much less comprehension of the consequences of their actions.  Once in police custody, individuals with autism can be treated more harshly due to their seeming lack of cooperation or remorse.  They may confess to crimes they did not commit in an effort to please the interrogator.  Thrown into the general prison population, they become a ready target for abuse.  Once out of prison, the transition back into society is more difficult for them than the average felon. 

A reader shared with me her frustration in trying to find housing for her ASD son, who is soon to be released from jail on a felony charge largely attributable to his disability. A group housing affiliate stated that they would consider housing an ex-murderer but couldn’t consider her loved one due to his “legal type problem.” Hence, an ex-murderer would be afforded a second chance that her son would not. Her righteous reaction is that anyone with a mental health, developmental disability or autism spectrum diagnosis should have access to reasonable accommodations under fair housing laws, regardless of having a felony. No one trying to re-enter society after prison should be put at risk for homelessness or recidivism because of their disability. 

While crimes committed by ASD individuals can be unfairly attributed to their disability (as in the case of the Newtown massacre), individuals on the autism spectrum are statistically more likely to be a victim of crime than commit one. It’s estimated that ASD individuals are four to ten times more likely to be victims of crime than their neurotypical counterparts.  Police, social workers and other intervening entities need to handle ASD victims with particular care so as not to traumatize them further.  Autism Society has created a series of downloadable pamphlets addressing important issues confronting professionals, victims and their families that can be downloaded here.

And then there’s every autism parents’ nightmare — wandering.  We have discovered that even incidents of wandering that end happily can turn to disaster when overzealous child protective services break up families in the name of saving them. The case of Ayn Van Dyk, the Canadian child who was seized and held for over a year is but the tip of the iceberg of institutional injustice against autism families. The trauma inflicted is incalculable. 

Against this dire backdrop, it is indeed heartening to discover more momentum gathering behind educating and reforming the criminal justice system when it comes to autism. A lengthy and detailed article at a police website addressed autism and law enforcement in all its aspects can be found here.

Dennis Debbaudt of Autism Risk & Safety Management is a career police officer, a father of a son with autism, and a trailblazer in making the world a safer place for our children with autism. Through his many training and outreach programs, he is the perfect liaison between law enforcement and autism. His website contains a plethora of downloadable information (parents of teens may be particularly interested in his materials about autism and driving).  Also heartening, more and more police departments are creating voluntary autism registries to aid in the recovery and soothing of wandering children, or to defuse potentially charged interactions with ASD individuals in their communities. 

There are things that we as parents and caregivers can do for our children. Coach your child on what to do if stopped by a police officer.  Play act possible scenarios.  See if your community has an autism registry that will give first responders a personal approach to helping your child if they wander or get stopped for jaywalking or some reason. And have your child wear a medical alert tag identifying their disorder.  As we keep pressing for more reform in the world at large, we can make our corner of it safer for our children.

About the Author
Susan Moffitt
http://susanmoffitt.com

Teen with Autism Sent to Jail for Selling Sugar Packs at School

In another episode of “World Gone Mad," a sixteen-year-old Ohio boy has been jailed for allegedly trying to sell sugar packets at school.  Conceptualized as a practical joke, the teen took sugar packets from the cafeteria and transferred them to a soda straw wrapper, telling classmates it was a “secret sugar rush concoction." Punishment was swift and ludicrous. The St. Mary’s Memorial High School student was arrested on probation and taken to jail under the school’s zero tolerance policy stated in their handbook: 

“In conjunction with the board policy, the St. Mary’s City Schools are a drug free zone and the Board of Education has zero tolerance for substance abuse or possession on school property. The school will cooperate fully with police investigation including but not limited to the use of canine patrol programs subject to the Board of Education policy.” 

The boy’s parents were duly outraged, his father issuing this statement: 

“He attempted to sell this as his secret sugar rush concoction. His maturity and emotional development is somewhere around the level of a 10 year old or 11. It was very obviously sugar, within a wrapper, candy wrapper. They knew they weren’t dealing with any drug. My son totally uprooted and slammed into jail over a sugar packet is completely unacceptable to me.” 

According to the boy’s mother, this is the second time the school has had her son arrested over a “frivolous matter.” These kinds of so called “Zero Tolerance Policies” are responsible for a bevy of other absurd incidents, such as these: 

* A fifth-grade class in California, in a gesture to support our troops fighting overseas, put toy soldiers on their graduation mortarboards. School officials forbade them from doing that unless the gun barrels were removed. Education officials pointed to a California weapons law. 

* A kindergarten student in Rhode Island was suspended for bringing a plastic knife to school to cut cookies. 

* A Utah boy was suspended for giving his cousin a cold pill prescribed to both students. 

* At Kilmer Middle School in Virginia, every type of student touching was banned, including handshakes, high-fives, and pats on the back.

St. Mary’s Memorial High School declined comment. The Miami Valley Crime Lab is analyzing the offending sugar packet. 

When will cooler heads prevail and the impulse to protect our children be tempered with common sense, especially when dealing with our special needs population? For any child to be subjected to such treatment is traumatic, but all-the-more so for one with autism. To ignore the extenuating circumstance of autism shows just how much work remains to be done within our public schools to bring officials into the twenty-first century. 


Scientific Community Shuns Sensory Integration Therapy for Autism

Sensory Processing Issues Autism

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Researchers at the University of Texas, led by Professor Mark O’Reilly, have declared that Sensory Integration Therapy (SIT) is scientifically ungrounded and should cease to be used by a majority of occupational therapists in the treatment of autism spectrum disorders (ASDs).  Since many agencies are mandated to use only scientifically-proven methods, they advocate that Applied Behavioral Therapy (ABA) should be the sole therapy employed.

Noteworthy is the fact that this university is among the few that offer certification in ABA.  O’Reilly’s conclusions are supported by recent statements by the American Society of Pediatrics disparaging SIT as scientifically unproven.  So say goodbye to weighted blankets, swings and bouncy balls and say hello to rote repetition of desired skills. 

Now I realize that ABA is a viable therapy for autism and is proven to establish age-appropriate, desirable behavior but does it really need to supplant SIT? 

Experts see danger in SIT because they deem it rewarding of undesirable behaviors. Act out and you get to go sit on a bouncy ball and not complete that loathsome math worksheet. And offering pleasant distractions from performing desired tasks messes up ABA therapy when used concurrently. 

My hackles are now up.  Full disclosure, my child never had ABA.  His life may have unfolded much differently and better if he had.  But he did have an overabundance of individuals who felt his spectacular meltdowns were gross manipulations in order to get out of doing something unpleasant.  And what I reiterated until I was blue in the face was that my son wasn’t trying to get out of the work itself, rather the extreme anxiety the work induced.  There’s a term for this: Pathological Demand Avoidance, a condition in which the everyday demands of life induce unbearable stress. 

My son was hospitalized twice for anxiety, during which time he would spend the entirety of his psych ward school time convulsing because he couldn’t bear math worksheets.  It broke my heart but the staff maintained that he would “flame out” and eventually perform the tasks, but the grand progress cited was a reduction of 5 minutes in fits by the end of his two weeks in lockdown. 

The fact is that some children need to be soothed before they can be educated. A total of two teachers in my son’s eleven years of school appreciated this. His time in their classrooms were halcyon days of productivity.  Yes, he sat on a couch instead of a desk, and from that couch he could actually focus and absorb what the teacher was saying.  Yes, if he started to get anxious, he could go for a walk but he did so before he exploded and came back calm and ready to get back into the flow. These strategies weren’t coddling, they were accommodations that worked.

I sometimes despair at the chasm between those who scientifically study autism and those of us who are actually in the trenches.  Techniques I learned from SIT were life lines. One of the blessings of my neighborhood is that we live close to a park with swings. Swinging was the fastest way to calm my son.  And what would I do if I couldn’t lay his heavy blanket over him at home, bringing him instance peace?  His public outbursts were cut by more than half after I purchased noise reducing headphones. 

Now that he’s sixteen, the headphones are hooked into his iPod.  Just last week, I took him to the dentist and cringed when I heard him shrieking inside.  His doctor emerged to report that as soon as they put a weighted blanket on him, he was fine. Some things never change. 

Maybe what you know can’t be scientifically proven, but the truth of it remains…

Outgrowing Autism and the Hype of a New Study

The latest big autism story is a new study by University of Connecticut psychology professor Deborah Fein that claims some children with autism can not only lose their diagnosis as they get older, but become indistinguishable from typical peers. Fein assessed 34 adults who had been given an autism diagnosis as children, many of whom had received behavioral interventions and were deemed to have “optimal outcomes.” As young adults, the study subjects were found to have “no current symptoms of the disorder” and to be “functioning on a par with their mainstream peers.” 

This has led to an onslaught of headlines about children “outgrowing autism” and becoming "cured."  While initially reticent to open this Pandora’s box, I have felt increasing compelled to put in my two cents worth on the controversy. 

First of all, while this premise may never have been scientifically proven before, it is not fresh news. I remember listening to Dr. Tony Attwood roughly seven years ago as he described high functioning autism existing on a spectrum from severe dysfunction to becoming a personality trait. This is not a passive experience of merely “outgrowing” something as you would the myriad immature behaviors of childhood, but an active and sustained effort over the course of years to resolve problematic issues inherent in having autism. Significant is the fact that the study subject had all engaged in intensive behavioral therapy which help them to adapt to the neurotypical world, or “play the game," as it were. While in no way disparaging behavioral therapy and successfully functioning in the larger world, this is not indicative of no longer having autism. A high functioning person with autism still carries the joys and burdens of it for life. They may shed a clinical diagnosis, but autism is still the prism through which they experience the world. 

This leads us to another issue.  Many consider autism a source of pride and would no longer shed it than they would an ethnic heritage or distinctive physical trait. This brings to mind a time when one of my high functioning twins was asked to write a two page essay on what it’s like to have a disorder.  He wrote the single sentence, “It’s like having brown eyes."  That phrase is enshrined in my heart and mind. 

Like the subjects of the test, my son passes for "normal," is successful in school, beloved by his high school teachers.  But the myriad social interactions and pressures he successfully fields each day leave him utterly exhausted in a way his neurotypical peers will never experience.  While he has acquaintances in his classes, he true sense of belonging is derived from the Robotics Club, where he gathers with other "nerds."   He still gets a PE exemption from the agony of team sports and will never go to a school football game.  Is he proud to have shed the identity of being autistic, that he passes for neurotypical? Yes and no. He doesn’t want to be defined by his autism, but he is very proud of the distinct gifts it bestows, his unique take on the world, his piercing intellect when it comes to his special interest.  He is at peace with himself. 

I believe the take away from the Fein study is but a confirmation that within the course of a lifetime, all children with autism can and will grow and change within their personal, idiosyncratic spectrum of possibility.  Studies like this can raise hopes of a “cure” and subsequently dash the hopes of parents whose kids don’t experience similar outcomes.  Concomitant feelings of regret are a risk.  “If-only” mantras could afflict parents who didn’t give their children intensive behavior therapy as the “successful” test participants reported.  For what it’s worth, my son never had behavior therapy and didn’t even have early intervention.  

There is no rubric for autism parenthood, just unconditional love and devotion.

Theater of Possibility for Autism

Seattle theater artist and playwright, Lauren Marshall, has developed an amazing class for both neurotypical and special needs children. Entitled “Theater of Possibility," Lauren synthesizes what she has learned as a mother of two daughters on the autism spectrum with Relationship Development Intervention (RDI) and “Theatre of the Oppressed," a movement that employs theater as an agent of social change. 

RDI is a parent-based therapy that addresses core deficits of autism such as emotional referencing, social coordination, flexible thinking, declarative language, foresight/hindsight and relational information process (the ability to solve problems that have no right or wrong solution). Having realized the shortcomings of ABA (Applied Behavioral Analysis) in creating more than mimicked skills in her daughters, Lauren turned to RDI to fill in the “why” of performing social behaviors. For instance, her theater games require participants to utilize eye contact and read facial expressions in order to know what to do next, teaching non verbal communication in a playful, effective manner. 

Lauren also infuses her curriculum with the principles of Augusto Boal, the Brazilian founder of “Theatre of the Oppressed” who maintained that “oppression is when one person is dominated by the monologue of another and has no chance to reply."  He created the concept of using theater as a means of empowering audiences and performers alike. The heart of Boal’s work is the spect-actor, the audience members who are asked to join in problem solving the dilemma presented onstage.  Major techniques of “Theatre of the Oppressed” that Lauren draws upon include: 

Forum Theater – A problem solving technique in which an unresolved scene of oppression is presented. It is then replayed with the audience invited to stop the action, replace the character they feel is “lacking power”, and improvise solutions. This structure can be used to explore past and current situations, or as a rehearsal for a future event. 

The Cop in the Head – Techniques that help individuals explore the internal voices, fears, oppressions that prevent him/her from living fully. Rather than focus on external oppressors (“cops”), these techniques bring to light the “cops” inside one’s head. 

The Rainbow of Desire – A technique which deconstructs one person’s story of tension in a relationship – parent/child, employer/employee, lovers, friends, etc. Using Image Theater, we then identify and bring to life the various conflicting emotions — the fears and desires that are happening inside the characters. The process very quickly goes beyond the individual story into an exploration of the group experience and the “rainbow” of who we are. 

Lauren’s ability to bring together kids with diverse needs and have them work harmoniously is an outstanding part of her class. Neurotypical kids and those with various degrees of challenges strike a chord of true mutual understanding and appreciation.  

My sixteen-year-old son has never fared well in the classroom setting and when I sent him off to the first meeting of Theater of Possibility, I fully expected a cell phone call telling me to come get him soon after I left.  Instead, at the end of the class I heard “what a joy he is to work with!” I couldn’t believe my ears.  When his class gave its final presentation, my other son balked at having to attend, but soon he was joining in onstage, having the time of his life.  He signed on for the next session. 

When our kids thrive at something they attempt, it’s a such a joy.  Improvisation affords them the opportunity to learn social skills obliquely and act out their inner lives instead of acting out.  

To read an interview with Ms. Marshall and hear about my son’s scene as “The Disaffected Boy” go to:  http://www.seattleschild.com/article/the-theater-of-possibility

Autistic Girl Seized by Canadian Government Heading Home

Ayn Van Dyk

Ayn Van Dyk

Of all the sad autism stories I have encountered, perhaps none has haunted me more than that of Ayn Van Dyk, the ten year old Canadian girl who was abducted from her school by Canada’s Child Protective Services.  As this site has documented in the past, Ayn had been successfully found safe and sound after a wandering incident at her home, but authorities seized her and put her in state custody “to lighten the load” of her single father of three.

While in custody, she was heavily drugged on anti-psychotics as her frantic father Derek, fought tirelessly for her release. 

So it was with great trepidation that I recently set out to learn what had become of her in the many months since I had followed the story.  To my great and utter delight, the Freedom for Ayn blog has reported that the family’s horrible ordeal of more than five hundred days is now drawing to a close.  Ayn is coming home very soon. 

While details are scant, it appears that her father finally had his day in court. 

In a time when we’re overdue for good news, this is indeed a candle in the darkness. Ayn won’t be the same little girl who wandered out of her yard so long ago and the damage to this family has been done, but at least now the recovery and healing can begin.

For more details on Ayn’s story, here’s a timeline of previous posts that shed more light on her and her family’s plight:

The State vs. Autism Families – June 26, 2011

Nine Year Old with Autism Still Being Kept from Her Father – July 17, 2011

Update on Child with Autism Removed from Home – August 4, 2011

Child with Autism Taken by Authorities, Remains in Custody - January 29, 2012

Agency Involved in Autism Case No Stranger to Controversy – February 13, 2012

Justice Sought for Autistic Girl Seized by Canadian Government - March 12, 2012



UPDATE —  WE RECEIVED THE FOLLOWING NOTE FROM A REPRESENTATIVE AT PROTECTING CANADIAN CHILDREN:

Yes, Ayn is coming home to her daddy and 2 siblings. Derek, however, did not receive his day in court… Actually, MCFD entered with a deal to avert a trial just days prior to a scheduled hearing. An agreement was reached in which the Ministry conceded, no finding of need to intervene existed! More than a year and a half has transpired since the nightmare began; an unacceptable delay of justice.

The story of Derek Hoare and his little girl, Ayn, is a tragic one; one that sadly, is afflicting many Canadian households: Children with disability, such as Autism, are being herded under the scope of Child Welfare Intervention despite absence of negligence or abuse.

SAMANTHA’S LAW in the neighbouring Province of Alberta could have averted this tragic demonstration of Ministry’s ignorance towards the disabled community in British Columbia. Caring families dealing with issues of medical and developmental diversity must be handled distinctly from the Child Welfare Intervention Model.

Sincerely,

Velvet Martin,
Spokesperson for Protecting Canadian Children
http://www.protectingcanadianchildren.ca

Autism, Adulthood and Transitional Challenges

Autism Transition

The tragedy in Newtown, Connecticut shines a light on the need for exceptional care of autism spectrum students as they transition out of public schools and into adulthood. We see this phenomenon come into play as Adam Lanza is said to have spent two years living in isolation in his basement, largely playing violent video games in the run up to the shooting. 

Having recently withdrawn my son from his high school, I can relate to Nancy Lanza leaving the school system and know firsthand what a toll it takes on both child and parent being isolated together in the wake of that. I keep my son monitored through counseling and engaged in a handful of activities we’ve found in which he enjoys success, but it’s still very hard for him to not be in school like other kids his age.  At sixteen, his future is uncertain. 

Schools are legally obligated to take care of our special needs children until they are twenty-one.  So why would parents like me cut loose of the safety net of proffered transitional services? 

The truth is, we have become fed up with our children’s school systems being unwilling/unable to meet their needs and assuming an adversarial stance against us.  Two camps who should be arriving at what is best for the child become locked in mortal combat. Faith is broken and as a result, we have cut our losses and retreated from the battlefield. 

For myself, I suspected there was little to be lost in doing so.  If transitional services are anything like other educational services we’ve endured, we would be better off without them.  The Department of Vocational Rehabilitation was the named clearinghouse for my son’s future, but his unique profile of strengths and weaknesses did not match what they had to offer.

Fortunately, wonderful readers to my previous posts responded to my plight and gave me a lead: The Center for Change in Transition Services here in Seattle.  Their website reports that transition services are a set of coordinated activities designed to be a results-oriented process that facilitates the successful movement from school to postsecondary living. These activities are based on a student’s needs, strengths, preferences and interests. Transition services include instruction, related services, community experiences, the development of employment and other post-school living objectives and, when appropriate, daily living skills.  I am eager to call them after Christmas.

I looked for a state-by-state guide to transitional services and found a “Resources Roadmap” at http://www.autismafter16.com. There’s also the ASAN (Autistic Self Advocacy Network) which has education and employment among its many topics. Founded by Ari Ne’eman, President Obama’s 2009 appointee to the National Council on Disability, ASAN is on the cutting edge of viewing autism spectrum disorder as a major civil rights movement of our time.  They partner closely with businesses to expand opportunites for individuals on the autism spectrum. 

If anyone else has more links to share, please do so.  It’s time to pool our knowledge and help each other through these difficult days.

Restraint and Seclusion: The Dark Secret of American Schools

I recently examined the events in Newtown through the lens of special education in this country, contending it is a broken system in need of as much attention as gun control and mental health. Out of that sprang a question in my mind, “In the last year, how many special needs children died in our schools at the hands of adults charged with their care?” 

It took me a long time to find an answer, and the answer is I couldn’t find a definitive one.

A hodgepodge of statistics gathered by various groups demonstrates that there is no national system of reporting serious and fatal incidents involving restraint and seclusion in our schools. States vary as to whether they even have rules and regulations governing interventions in the school setting. Many injuries and deaths go unreported. The best information we have comes from a report issued by the U.S. Government Accountability Office (GAO) in 2009 estimating that over 200 students have died as a result of school based seclusion and restraints between 1999 and 2009.

Then on May 27, 2009, The Council of Parent Attorneys and Advocates (COPAA) issued a report, “ Unsafe in the Schoolhouse: Abuse of Children with Disabilities,” which contained the horrifying statistic that 68% of the students who were subject to seclusion or restraints were diagnosed with autism or Asperger’s syndrome. In other words, brute force is applied in lieu of best practices in dealing with our children’s autism

Restraint and Seclusion: Resource Document (US Dept of Ed, May 2012) puts forth a concerted effort to address these serious issues. The report makes clear that restraint and seclusion are intended only as a means of last resort, when the child is of imminent harm to himself or others. Aside from physical harm that can culminate in death, restraint and seclusion psychologically mar the child, and as a strategy provokes the behaviors it is intended to stop. Tragically, restraint or seclusion are often used as a routine means to address instructional problems or inappropriate behavior such as disrespect, noncompliance, insubordination, etc., as a means of coercion or retaliation, or simple convenience. Lack of training is cited as a huge element in harmful and deadly incidents. The report goes on to conclude that positive behavior supports must supplant restraint and seclusion. A comprehensive list of fifteen guidelines are laid out, but the document lacks muscle. 

Unless and until there is national legislation, there will be no enforceable protections. Sen. Thomas “Tom” Harkin [D-IA] recently introduced S. 2020: Keeping All Students Safe Act, but lawmakers have indicated no plans to take up the issue. Indeed, govtrack.us gives us a dismal prognosis that it has a 34% chance of getting past committee and 6% chance of being enacted. 

How many more children will be psychologically damaged, physically injured, or killed before lawmakers take up their cause??

Susan Moffitt

Special Education: An Overlooked Factor to the Newtown Tragedy

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Something has been tugging at my heart in the wake of the unfathomable tragedy in Newtown, CT.  The obvious broken systems have been laid bare.  Gun control issues must be wrestled away from special interests and mental health must be recognized as an urgent public health issue. 

But there’s another broken system in America that has yet to be fully addressed in light of Friday’s incident:  special education.

I venture to say that every parent of a special needs child knows of what I speak. 

Certainly, here in Seattle, it is common knowledge that school districts fail to provide a free and appropriate education to every child it serves.  A scathing article in the Seattle Times lays out what everyone knows all too well – teachers are without the proper training and resources to address the needs of their most vulnerable of students.

Because of this, I can certainly relate to certain elements of the Adam Lanza story. I, too, have been forced to homeschool my high school-aged son with Asperger’s because he was unable to withstand the hurly-burly of a huge, urban high school, nor thrive in the self-contained setting they offered with other children who were extremely low functioning.  Like Lanza, my son would become easily overwhelmed and take flight from what he was supposed to be doing. When a beloved classroom aide transferred to another school, no one had my son’s back anymore and the school would not be proactive about his triggers, despite my myriad exhortations. 

When I withdrew my “problem” child from school, they were nothing but relieved. I asked for homeschool resources and all they gave me was a list of free online courses. The district’s beautifully appointed Homeschool Resource Center, with its science lab, gym, library and classrooms are only for the neurotypical because I was told “they don’t have the budget to service Level 3 Special Ed students."  Now, the end result is an isolated teen who becomes more so, consigned to stare at a computer screen all day long.

I’ve been piecing together a new life for my son with my limited resources, but it’s certainly not easy. And then I read of Nancy Lanza, without a financial care in the world, holed up with her degenerating son. Maybe when you live high on a hill in an idyllic town, it’s harder to admit the reality of your life does not match the veneer — that you, in fact, aren’t hacking it as a single mother of a troubled child and that you need help. 

By all accounts, Ms. Lanza’s forays into the community were to escape her troubles, not to share them.  It reads like a major mental illness such as schizophrenia had befallen her son, and denial allowed her to believe she could handle him alone.  It remains to be seen if her gun collection was secured, but the decision to teach her son to shoot was a tragic one. If she had survived, she likely would’ve faced charges of culpability.

One fact among everything I read stuck with me — Adam Lanza’s problems first became apparent when he started elementary school and he could not find his place amongst his peers.  Maybe this is a clue as to why he revisited that scene with such deadly intent.  

To be very clear, I am in no way sympathizing with Lanza nor am I justifying the horrific acts he committed.  However, due to my own personal experiences as a single mother with a special needs child, I feel I understand much better than most as to why things unfolded the way they did.

When talking heads now espouse the need to take care of our children, special pains must be made to include all of them, including our most vulnerable.  Special education teachers need special training and programs must fit the child, rather than vice versa.  Federal pressure must be brought to bear upon school systems who chronically and flagrantly violate the civil rights of our special needs children so that the IDEA (Individuals with Disabilities Education Act of 1975) is not a lofty dream, but a working reality.

The conscience of a nation needs awakening … the dire state of our special education system affects us all.

Susan Moffitt

Adam Lanza and Autism: An Unfortunate Connection

Adam Lanza

ABC News

While still in shock and disbelief from yesterday’s deadly school shooting in Newtown, Connecticut, I was closely following a real-time feed from ABC when the following was posted to its timeline:

"Ryan Lanza, 24, brother of gunman Adam Lanza, 20, tells authorities that his younger brother is autistic, or has Asperger syndrome and a “personality disorder.” Neighbors described the younger man to ABC as “odd” and displaying characteristics associated with obsessive-compulsive disorder."

My heart sank after reading this update as I immediately knew yet again, those within the autism community, including myself, would have their work cut out for themselves in educating a misinformed public due to yet another high-profile case involving violence and Asperger’s syndrome (a high-functioning form of autism). Case-in-point, The Independent, one of Britian’s national newspapers, reported this morning that Lanza possibly suffers from “Asperger’s disease.”

In January of this year, there was the Los Angeles arson case and then in July, there was the Aurora movie theatre massacre.  Now, unfortunately, we have another instance in which autism and violence are being mentioned in the same breath.  This time, however, it is now tied to one of the most heinous acts of mass murder carried out in American history.  It’s important to note that in all three of these cases, each of the suspects were thought to have Asperger’s by the media and others.  I have yet to see any reports from an actual physician or psychologist confirming these armchair diagnoses.

While the facts of the Newtown school shooting are still emerging, it’s appearing that Lanza may have had a host of psychological and emotional issues.  However, if a high-functioning autism diagnosis is eventually confirmed, everyone needs to remember the following: Adam Lanza carried out these horrific acts in spite of his Asperger’s, not because of it.  

As investigators begin to peel away the layers from this young man’s life, I think we’ll learn that many other underlying factors contributed to his actions.  I refuse to speculate what those might be, lest I be guilty of stereotyping others (divorce victims, gamers, etc.) the same way autistics have been stereotyped thus far, both in this case and others.

Additionally, there is no evidence to suggest that those with autism or Asperger’s syndrome have a propensity to commit violent crimes.  In fact, one study actually disproves this theory altogether and demonstrates that those with autism spectrum disorders are no more likely to commit crimes than their neurotypical counterparts (Barnhill, 2007; Griffith, 10 May 2006).

Further adding to the confusion, the American Psychiatric Association is set to release its DSM-V (Diagnostic and Statistical Manual of Mental Disorders, 5th Edition) in May of next year.  This is considered the standard-bearer for classifying and diagnosing mental disorders.  In it, Asperger syndrome has been completely removed as a separate condition and merged together with other forms of autism spectrum disorders (ASDs).  This will undoubtedly further muddy the waters when it comes to the general public’s view on autism, what it is and how it affects those who have it.

My son, who has been diagnosed with high-functioning autism, currently attends a mainstream school.  My fear is that due to the incessant media reporting about Adam Lanza’s possible autism, many of his teachers and fellow students will, through no fault of their own, subconsciously look upon him with an element of distrust, speculating whether or not he too is capable of committing similar acts of violence.

The autism community is finally starting to emerge from the "Rain Man" shadow that was cast nearly 25 years ago and the last thing we need is a new stereotype that paints those with the condition as mass murderers. We have too many other battles to fight and do not need this one as well. 

It’s my hope that the media will begin to responsibly report on the Connecticut school shooting and its potential autism connection in the coming days and weeks ahead.

A good start would be to properly reference autism as a disorder and not a “disease.”

 
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Did You Know?

  • * In 1970, Autism affected 1 out of 10,000 children
  • * Autism now affects 1 out of 88 children
  • * Autism affects 1 in 54 boys
  • * 1.7 million Americans have some form of autism
  • * 4 out of 5 autistic children are boys

RSS Latest Article Entries

  • Children With Autism Detect Motion Twice as Fast May 22, 2013
    Recent studies at Vanderbilt University and the University of Rochester reveal a startling discovery about autism.  In testing a common theory about autism that overwhelming sensory stimulation inhibits other brain functions, researchers decided to study how kids with autism process moving images.  They found that children with autism detect simple movement […]
 

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