Winter has been particularly harsh this year and in some areas, weather conditions
have made the flu season difficult to contend with as Influenza cases are
continuing to spread rapidly. The University of Wyoming reports widespread cases
throughout the state and the school’s Student Health Services has been treating
several patients per day with flu-like symptoms. The state of Indiana has just
been listed in the "wide-spread" outbreak category, and according
to the CDC, this scenario is playing out in many states around the country.
Influenza (the flu) is a contagious respiratory illness caused by a virus. Symptoms include fever, headache, extreme tiredness, dry cough, sore throat, runny or stuffy nose and muscle aches.
It can lead to severe illness and complications, particularly among older people,
children and those with compromised immune systems.
Practical ways to prevent the spread of the flu include thorough hand washing (for more than 20 seconds using a rubbing, friction
action) and of course, covering one’s mouth when coughing with the inside of an elbow and not
with the hands.
In addition to hygiene, another preventative measure for the flu is an annual
vaccine, as recommended by the CDC for those 6 months or older.
Although mercury in vaccines has been proven to not cause autism, there
are suggestions that heavy metals can certainly trigger or further complicate
conditions in an already pre-disposed child.
Thimerosal (a mercury-based preservative) has allegedly been removed from all vaccines,
with the exception of some brands of the flu shot and some plain tetanus and
diphtheria-tetanus shots. For
the 2010-2011 season, Agriflu, Fluarix, and Flumist are brands that do
not contain mercury, while Afluria, FluLaval, Fluvirin, and the multi-dose version of Fluzone all contain
at least some traces of mercury.
Parents should be both educated and prepared when questioning their doctors about
the injections given to their children with autism spectrum disorders. With the
flu season now in high gear, consult with them about Fluzone and demand single doses for your child’s
age and weight versus the cheaper method of drawing from the larger, multi-dose
vial. If Fluzone is not an option, be sure to demand one of the three brands
listed above that do not contain Thimerosal, assuming it is age-appropriate.
Heavy metals have been known to play a role in the neurological functions and seizures associated with
autism spectrum disorders. And although autism is a pre-disposed condition, you certainly don’t want to add to the barrage of interruptions already present in the brain.
Be informed, get tough, stand your ground and continue advocating on your
child’s behalf and your autism journey will turn into a very rewarding
experience, even during the dreary flu season.
Residents of the United States will be facing the peak of flu season (which
runs from October through May) in the coming few weeks and it’s likely that a
portion of children who get sick will require hospitalization during that time.
Every child is anxious when they have to stay in the hospital, but for
a child on the autism spectrum, these stressors can expand exponentially. Like
other services in our society, most hospitals are behind-the-curve in dealing
with patients who have autism. This lack of preparedness in the
medical setting can cause many problems and untold grief for children and
Fortunately, some hospitals are facing the problem head-on. The
Hospitalist reports of a handful of medical facilities around the country
that have autism consultants who are called in to help with arriving patients,
providing an array of ideas for both parents and staff. While this is a good
start, much more work is needed in this area.
When a child with autism arrives at the hospital, doctors and nurses need to
make the child’s life as consistent as possible. Limiting the number of
physicians and nurses interacting with them is extremely important. With the
proliferation of teaching hospitals, this can often be difficult. ¨Grand Rounds¨
when doctors and their legions of interns crowd into the patient’s room is
unduly stressful and should be avoided.
Regardless of a child’s age, a family member in the room twenty-four hours a day
is highly recommended. I discovered the hard way that many children’s
hospitals have twenty-four hour babysitting services, but don’t make it widely
known to patients or their families. If you don’t have a family member who can
stay with your child around the clock, ask the hospital to provide a companion
when you can’t be there.
Dimming lights, keeping noise levels low, touching children infrequently and
letting them know what will be happening next are other ways to limit sensory
overload. Doctors should turn off cell phones and pagers and be sure to have
enough time to attend to the child.
Involving a child in activities such as wearing the same hat as a surgeon,
having them touch and handle a wrist bracelet before putting it on, or being
shown medical equipment before it is used can all help counteract the onslaught
of foreign experiences.
From personal experience, I highly recommend that every time a youngster has to
contend with a shot or blood work, insist that Emla cream be applied first.
Rubbed on the injection site thirty minutes or more in advance, Emla completely
numbs the area so that the needle won’t even be felt.
Scary procedures usually done under local anesthesia can be performed under
general anesthesia instead. When my son had to have an endoscopy, having him
sleep through it spared him both the terror and stress.
If a staff member is speaking in a way that is inadvertently upsetting your
child, take them aside and politely coach them.
Also, don’t presume a medication is appropriate just because the doctor says so.
Do your own research. A heartbreaking
scenario unfolded in Seattle when a boy with autism was getting a tooth
extracted in the dental clinic and died from a patch placed on his arm for pain.
He couldn’t tolerate swallowing pills, but the patch carried a black box warning
that it was only to be used for cancer patients with a high tolerance for
opiates. Although the parents were awarded a multi-million dollar lawsuit
settlement, it was no consolation for their grief and loss.
Statistically, your child will eventually find his or her way into the emergency
room at some point in the future. In fact, according
to the CDC, approximately 200,000 Americans require hospitalization each
year from the flu virus alone, with a good portion of those patients being
children and the elderly. These numbers don’t even take into account the
myriad of other reasons a child on the autism spectrum may require inpatient
Having a loved one in the hospital can be overwhelming, and at times,
terrifying. Don’t wait until it’s too late and don’t assume a hospital
will be equipped to handle your child. Make plans now and have a hospital
plan in place so you’ll be fully prepared when that time comes.
Each year, American Idol produces a handful of contestants who give memorable
performances during the audition rounds, immediately making them odds-on
favorites to win. Last night, millions of American Idol viewers were introduced
to just such a contestant in James Durbin. Durbin is a 21-year-old Santa Cruz,
California resident and unemployed father who has faced some major challenges
over his lifetime.
At the age of nine, Durbin’s father died of a drug overdose and the Idol singer
has also been
diagnosed with Tourette syndrome and Asperger’s, a high-functioning form of
James Durbin wowed the judges with an amazing vocal range, which included
renditions of "You Shook Me" and "Dream On." Judge Steven
Tyler was particularly impressed, saying, “Wow man, that was so, so good."
Comparisons are already being made to Season 8 American Idol runner-up,
Adam Lambert. However, Durbin is actually much different and his unique story, coupled with an amazing voice, will surely make him a fan
favorite and front-runner to win it all. If that were to happen, Durbin would
join a growing list of individuals (i.e. Jason McElwain, Temple
Grandin, etc.) who have shattered many of the stereotypes and misconceptions
about what it means to have autism and what those who have it are capable of
After his performance, James Durbin admitted to the judges that when he
sings, his Tourette’s "all goes away." Hopefully, Durbin doesn’t
anytime soon and is eventually crowned the Season 10 winner.
Last year, autism rights activist Ari Ne’eman was appointed to the National Council on Disability as the first openly autistic presidential appointee in American
history. Ne´eman points out that both the law and an overwhelming body of empirical evidence support the notion that children with autism benefit most from an inclusionary model of
"Research has repeatedly found that inclusion of autistic students in the general educational setting leads to significant gains in academic achievement and standardized test scores, adaptive behavior, communication, social relationships and interaction, and post-high school outcomes for those students.
In comparison, autistic students who are educated primarily in segregated or life-skills settings score lower on assessments, make less progress in reading and math, have fewer social interactions and positive peer relationships, communicate less, and have lower adult outcomes and more issues with generalizing skills and adaptive behaviors."
The law also dictates that when appropriate programs for children on the autism spectrum are not available, it’s incumbent upon that school district to adjust their programs rather than
to send those children away to autism schools. In other words, the program must
conform to the child rather than the child conforming to the
Given the fact that many schools are not up-to-par in regards to their autism inclusion programs,
one wonders if this notion of building expensive and separate schools isn’t a cost-cutting move disguised as a gift horse.
What lends more credence to this notion is a 2009 Supreme Court ruling decision
(6-3), stated that parents can place their kids in private schools unilaterally and then ask public schools to pay. Parents used to be required to try out a program for their child
first before seeking an out-of-school placement, but that is no longer the
Mr. Ne´eman prefers that money designated to build segregated schools should be used to offset cuts in special education and that a ¨race-to-the-top¨ should be ignited to see which schools can come up with the best inclusion programs that could serve as
examples for other
Controversies such as these invariably bring out some irate parents of neurotypical children who claim their children are suffering from having
children with autism in their midst.
Like nails on chalkboard, these voices of fear and disdain only prove the necessity of neurotypical and autism spectrum children growing in appreciation of one another through day-to-day
interaction instead of opting for the segregation option that has been
all-too-common in the past.
A group from Washington
University in St. Louis reports that upon finishing high school, many children with autism spectrum disorders (ASDs) are left without
the proper supportive or health services that they previous had access to. According to the
report, nearly 40 percent of youths with ASDs from among the more than 400 surveyed participants enrolled in special
education failed to receive any speech therapy, case management, mental health services or other health services after they
There’s been little research as to what happens to adolescents with autism once they reach young adulthood. Because of their challenges with communication and social
interaction, as well as their greater reliance on others for aid and high rates of co-morbid medical problems, youths are
particularly vulnerable during this time.
This period is known as “Transition."
Transition is the process that takes young people with special needs from childhood to
adulthood, usually occurs between the ages of 14 and 22 and must promote
movement from school to post-school activities.
All children, whether or not they have a disability, have rights, talents and dreams. For students with special
needs, the key to a smooth transition to adulthood lies in recognizing their
unique gifts, abilities and goals. Transition can be much more successful if a student has access to all the supports and services that permit
him or her to live as independently as possible.
Under the Individuals with Disabilities Education Act (IDEA) and the Rehabilitation Act, students with disabilities have the right to substantial assistance in making the most of their transition years. Students covered by IDEA are required to begin transition
planning at age 14, with at least a statement in their education plan (IEP) of the supports and services that they’ll need during their high school years. By age 16, students
covered by IDEA are legally required to have a transition services plan (TIEP) covering all their needs to move toward successful adulthood.
However, they don’t always get the services they’re entitled to. That can be because the law and regulations are not well
understood, because providers are short on money or time or because the student’s transition team lacks an energetic, knowledgeable and determined leader.
The student and his or her team select goals for adulthood. The activities and services in the plan are designed to reach those goals. The outcome must be based on the
student’s needs, preferences and interests.
Some goals and services to be considered during the transition are:
• vocational rehabilitation
• vocational counseling
• vocational training
• career, trade or profession
• integrated employment (alongside non-disabled colleagues)
• supported employment
• self employment
• continuing and adult education
• adult services
• assistive technology
• independent living
• community participation (experiences such as attending church, taking public transportation, using the library)
Because not a lot of emphasis is placed on meeting the needs of individuals with
special needs once they finish high school, families can turn to The National Disability Rights Network (NDRN) for assistance and advocacy.
The National Disability Rights Network is a federally mandated, non-profit membership organization created to protect and advocate for basic rights for individuals with a wide range of disabilities,
including, but not limited to, those with cognitive, mental, sensory and physical disabilities. The NDRN members ensure accountability in education, health care, employment, housing, transportation and within the juvenile and criminal justice systems. They also investigate reports of abuse and neglect, and seek systemic change to prevent further incidents.
Well-managed transition years can be a time to prepare for adulthood, make workable living
arrangements and line up the services and technology that can supply freedom,
competence and mastery of life for a young adult with autism..
Temple Grandin was thrust into the national spotlight
nearly one year ago year after the release of HBO’s critically acclaimed movie, Temple
Grandin. She then became a near-household name last month after Claire
Danes, who portrayed her in the film, took home a Golden Globe award for her
However, few are aware that prior to the hit HBO film,
Temple Grandin was featured in a 2006 BBC
Horizon documentary, giving a fascinating glimpse
into her life and mind.
The Woman Who Thinks Like A Cow tells the true-life story of Dr. Grandin, who has autism and is a professor at Colorado
State University, specializing in the field of animal science.
In addition to the Golden Globes award, Grandin’s HBO movie was also nominated in 15
Emmy categories and received 5 awards, including Outstanding Made for Television
Movie and Best Actress in a Drama for Danes.
Grandin’s story has single-handedly shattered the misconceptions and
expectations of what people with autism can achieve in their lives and has
become an inspiration to many.
The Woman Who Thinks Like A Cow, differs from its HBO counterpart because
it shows the real Temple Grandin at work and in her element. As a
result, the viewer feels like they are getting a glimpse into what the world is
like from the vantage point of someone who grew up with and conquered autism.
Temple Grandin has a highly controversial and
groundbreaking theory that the autistic mind is closer to the animal mind when
it comes to perceptions of the world around us.She describes these minds like that of a prey animal, frightened and highly sensitive to outside stimuli. This includes being easily
startled by strange sights and sounds and constantly feeling alert and anxious.
Temple uses her intuition to understand the animal mind and associates it with
her own struggles with constant anxiety. This has enabled her to make a major
impact on animal welfare, in particular, the treatment of cows. She has been
instrumental in modifying the ways these animals are held, moved and slaughtered
and has developed numerous innovations in the humane treatment of beef
cattle. In fact, it has been reported that
nearly half of the cattle in the United States now go to slaughter in humane equipment designed by Temple Grandin.
The Woman Who Thinks Like A Cow is more than just
the story of Temple Grandin.This
short film also tries to address how our understanding of autism has progressed.For many years, during the fifties and sixties, many psychologists and
doctors were of the opinion that autism was an emotional disorder,
brought on by a disturbed childhood.Psychologist
Bruno Bettelheim believed that children developed autism because their mothers
had consciously or subconsciously rejected them as babies, and he consequently
believed that children with autism could be cured with psychotherapy.
When Temple Grandin was a baby, autism research was in its
infancy and many doctors didn’t even have a name for her condition.In her own words, as a young child Temple demonstrated “all the
full-blown symptoms of autism.”Many
children like her were even institutionalized.
With intensive tutoring and special care, it still took her many years to learn
basic skills.To this day, social
situations are still a struggle for her.But
approximately twenty years ago, Temple did something no one with autism had ever
done before — she wrote an autobiography entitled, "Emergence: Labeled
Autistic," which was her story of what it was like to grow up with
autism.Since then, she has written
several other books on autism and her life has been a revelation for parents
and scientists, providing much-needed understanding and insight into the inner
workings of the autistic mind.
Labeled "mentally retarded" when she was just three years old, Temple
is now an associate professor of animal science, a best-selling author and now
arguably the most famous person with autism in the world.
The much-overlooked 2006 BBC documentary is available for viewing below and is highly
The International Day of Prayer for Autism and Asperger’s Syndrome aka
"Autism Sunday," will be observed this
Sunday, February 13, 2011. The annual event, which was originally started in 2002 by
residents Ivan and Charika Corea, has since grown into a worldwide phenomena and is observed on the second Sunday in February. Churches of all denominations around the world have
been asked to pray for the autism community and others affected by the disorder.
Additionally, autism advocates have called others to participate in an
"Autism Sunday Twitter Storm," which will be held on the same day.
Everyone with a Twitter account has been asked to tweet as much as possible
about autism, using the hash tags #Autism and #AutismSunday.
If your church does not have plans to participate in Autism Sunday, we encourage
you to send an email or make a phone call asking them to mention Sunday’s event
during service or directly participate in it. Additionally, a note in your
church’s weekly newsletter or bulletin would also help a great deal in raising
awareness about this important event.
Meaningful, heartfelt prayer is a powerful way to establish intimacy with
God. More importantly, corporate prayer (collective prayers from a group) can go
a long way in making an impact in other people’s lives.
Please spread the word about this Sunday and help make an eternal difference for those with
autism, which is estimated to directly affect 67 million people around the
The University of Rochester Medical School recently
published a report entitled, ¨Popular Autism Diet Does Not Demonstrate Behavioral Improvement." The small, tightly controlled study on the effects of a gluten-free, casein-free (GFCF) diet found that it made no appreciable difference in the behavior, sleeping, or digestive habits of twenty-two children aged two-and-a-half to five-years-old. Results of this study were presented in the tone that desperate parents of children with autism will believe anything when it comes to cures.
A significant aside was that the study did not address a subset of children with autism – those with gastrointestinal problems. But a
2010 study conducted by the Autism Treatment Network shows that GI symptoms occur in nearly
one-half of children with autism spectrum disorders and the prevalence increases as children get
older (calling into question the age group of the study’s subjects). Children with GI problems suffer from more stomach problems, sleep disorders, behavior disturbances, and generally have a poorer quality of life.
Researchers are focusing more and more on the gastrointestinal symptoms specific to children with autism. The Autism Network For Dietary Intervention features an array of scientific studies on the topic and Dr. Arthur Krigsman, GI specialist and autism expert, has testified before Congress on the prevalence of this phenomenon
known as ¨autistic enterocolitis" (This is the area that the much-maligned Dr.
Andrew Wakefield focused on and an issue that should not be cast aside with his
The prevailing wisdom is that some people with autism spectrum disorders cannot properly digest gluten and casein, which form
peptides or substances that act like opiates in their bodies. The peptides then alter the person’s behavior, perceptions, and responses to his
or her environment. Some scientists now believe that these peptides trigger an unusual immune system response in a significant number of children with autism.
Additionally, a large number of children on the autism spectrum also have
underlying allergy issues, which can be exacerbated by certain foods, including
those containing dairy, wheat, and soy.
Gluten is a protein found in wheat and other grains, including oats, rye, barley, bulgar, and spelt. It’s also found in food starches, semolina, couscous, malt, some vinegars, soy sauce, teriyaki sauce, flavorings, artificial colors, and hydrolyzed vegetable proteins.
Casein is a protein found in milk and foods containing milk. It also may be added to non-milk products such as soy cheese and hot dogs in the form of caseinate.
Eliminating these proteins from the diet of a child with autism has been
reported by many parents to show mild to even dramatic results.
Before starting a GFCF diet, it is essential to consult a doctor who should screen your child with an IgG Elisa food allergy test. A blood sample sent to a lab will reveal what foods your child should limit and what foods your child should avoid altogether.
For some children, the GFCF diet isn’t enough. The Specific Carbohydrate Diet (SCD) eliminates all starch and has an exhaustive list of permissible and non-permissible foods.
Augmenting these diets with doctor recommended vitamins and supplements ensures your
child’s nutritional well being and lays the foundation for their improvement.
It’s amazing that the scientific community will often make sweeping assertions based upon a single
study and as a result, end up throwing the baby out with the bath water.
An appropriate diet for a child on the
autism spectrum is something that should at least be considered as a potential
treatment option, assuming it is done with the consultation and oversight of a
licensed medical physician.
With the autism rate now "officially" at 1 in 110 (the unofficial
rate is much higher), many find it surprising that so many around us are
affected. Autism is a "spectrum disorder," meaning there are varying
degrees and severity to the condition, with a number of cases going undetected.
Awareness and screening have greatly improved in the last ten years, but we
still have a long way to go.
I have often used Daryl Hannah as an example to battle those who stand on the platform that
autism is not "curable." I contend that by "cure," I mean a functional and
happy life, without requiring institutions or drugs, while still needing protection and
support from family, friends, and caregivers. There are MANY "typical"
persons in our society that need protection and support, but who are completely dysfunctional. They are called typical
only because they are undiagnosed.
I would use Temple Grandin to prove my case, but unfortunately, many of those same persons who are self-proclaimed
autism experts aren’t even familiar with who Dr. Temple Grandin is or what her achievements are.
There is the argument that Temple Grandin has high functioning autism. High functioning means an IQ
of 80 or above. This supports the notion that most of the people diagnosed with
ASD (which includes Asperger’s Syndrome), are in fact, high functioning. The bottom line is that great results should be expected of, and provided for, all
of those on the autism spectrum.
In past generations, people often kept journals or diaries so it’s easy to compare their characteristics with those that would be diagnosed with
autism today. The dark label of autism and the stigma that goes with it are devastating to
the healing process. Once we embrace the beauty and innocence of autism so that people no longer
fear the label, we will all begin to look objectively through the branches of our own family trees. We should recognize the idiosyncrasies in our own genetics
are directly tied to the titles our children now have.
With a significant amount of research under my belt, I now find myself wondering about three of my own immediate family members, as well as myself. It would certainly justify the
issues in all of our lives.
It would also connect the misunderstandings, relationship patterns, and eccentric histories of a large number of my ancestors. My family tree encompasses members of the Magna Charta, various different countries’
royalty (both well remembered and notorious), religious crusaders, and many more who led anything but typical lifestyles.
Finding someone to sit down to hash all of this through who possesses the credentials to give appropriate labels to my colorful ancestors is another story. I would feel selfish in knowing I took up anyone’s time while a tremendous portion of our population remains undiagnosed and falling through the cracks on waiting
lists for proper services.
Even if we were all diagnosed with autism, is our culture ready for the tsunami of mental, emotional, and neurological accommodations?
Awareness, acceptance, treatment, funding, education, compassion, understanding, laws, facilities, accommodating school programs,
and transportation services all need quick re-evaluations and autism must be
a top priority. Our children are here now and deserve a higher quality of life.
Perhaps if we would all seek out our own diagnosis, when our children are labeled, they would not be
alone. I consider myself fortunate to be a part of an autistic child’s world. Life is enhanced, miracles are witnessed and I learn about my own abilities and disabilities
each day. I am a much better person for being a part of autism and I am thankful
My son is part of a pivotal influence group that has already changed the course of history for the better. I am teaching him to have pride in his
autism label and demonstrating that there is no shame in it.
By no means do I intend to marginalize or dimish the challenges of autism, particularly those associated with “lower-functioning” individuals. However, autism is autism and those who have it are all in the hurricane. Some just happen to be in the eye-wall, while others experience the outer feeder bands.
It’s important to note that until the 1940s, autism was mistakenly categorized as various other disorders such as
schizophrenia. Dr. Leo Kanner noted the uniquely distinct patterns of behaviors, while at the same time, Dr. Hans Asperger came up with the name
I have compiled a list of my own, comprised of those who have, or are suspected
of having some form of ASD. My hope is that the negative stigma associated with our
children’s diagnoses would be lifted once and for all and those who are still here would come forward and speak out until our kids are able to.
In no particular order, here they are:
Daryl Hannah, Peter Howson, Luke Jackson, Heather Kuzmich, Virginia Woolf, William Shakespeare, Hans Christian Anderson, Goethe, Isaac Asimov, Craig Nicholls, Alexander Graham Bell, Gary Numan, Tim Page, Dawn Prince-Hughes, Vernon L. Smith, Satoshi Tajiri, Raymond Thompson, Liane Holliday Willey, Michelle Dawson, Temple Grandin, Caiseal Mor, Hikari Oe, Dylan Scott Pierce, Jim Sinclair, Amanda Baggs, Lucy Blackman, Alonzo Clemons, Tony DeBlois, Christopher Knowles, Leslie Lemke, Jonathan Lerman, Jason McElwain, Thristan Mendoza, Tito Mukhopadhyay, Derek Paravicini, Kim Peek, James Henry Pullen, Matt Savage, Birger Sellin, Henriett Seth, Daniel Tammet, Richard Wawro, Stephen Wiltshire, Napoleon Bonaparte, George Washington, John Quincy Adams, Andrew Jackson, Andrew Johnson, Abraham Lincoln, Teddy Roosevelt, William Taft, Harry Truman, Ludwig Van Beethoven, Elvis Presley, Peter the Great, Wilhelm II, Alexander the Great, Isaac Newton, Wolfgang Amadeus Mozart, Jeremy Bentham, Socrates, Henry Ford, Bill Gates, Robin Williams, Marilyn Monroe, Clark Gable, Charles Dickinson, Jane Austen, Béla Bartók, Ludwig von Beethoven, Anton Bruckner, Henry Cavendish, Emily Dickinson, Thomas Edison, Albert Einstein, Henry Ford, Kaspar Hauser, Oliver Heaviside, Thomas Jefferson, Carl Jung, Franz Kafka, Wasily Kandinsky, H P Lovecraft, Ludwig
II, Charles Rennie Mackintosh, Gustav Mahler, Friedrich Nietzsche, Bertrand Russell, George Bernard Shaw, Richard Strauss, Nikola Tesla, Henry Thoreau, Alan Turing, Mark Twain, Vincent Van Gogh, Matthew Laborteaux, Ludwig Wittgenstein, Isaac Asimov, Hans Asperger, John Denver, Glenn Gould, Jim Henson, Alfred Hitchcock, Howard Hughes, Andy Kaufman, L S Lowry, Charles Schulz, Andy Warhol, Woody Allen, Tony Bennett, Bob Dylan, Joseph Erber, Bobby Fischer, Bill Gates, Al Gore, Jeff Greenfield. David Helfgott, Garrison Keillor, John Motson, John Nash, Michael Palin, Keanu Reeves, Oliver Sacks, James Taylor, Dezi Carden, Dan Aykroyd, Shannon Bull, Louis IV of France, Catherine the Great, Leonardo da Vinci,
and Peter Tork.
If being diagnosed with autism would put me in such great company, PLEASE, label me
Parents of children with autism will invariably face difficult decisions regarding their
children’s best course of treatment. Among the most agonizing of these, is the decision to use prescription
drugs to treat their condition. Against the backdrop of spiraling cases of autism, anti-psychotic medications, once reserved for schizophrenia and other major mental illnesses, are being used more and more to treat autism.
recently reports that an emerging study conducted at Stanford University School of Medicine and University of Chicago confirms long held suspicions
– that atypical anti-psychotic medications such as, Seroquel, Abilify, Zyprexa, and Risperdal are
not proven to work and can even lead to serious side effects, including substantial weight gain in the first three months of
use and a much higher incidence of diabetes and heart disease. Involuntary and permanent muscle spasms are also common after prolonged use.
And an article in The New York Times
states that federally financed drug research reveals that children covered by Medicaid are given powerful anti-psychotic medicines at a rate four-times higher than children whose parents have private insurance. Medicaid children are also more likely to receive the drugs for less severe conditions in lieu of individual and family therapy. Anti-psychotics are extremely expensive and Medicaid reimbursement rates are much higher
than traditional therapies.
Every major drug company selling atypical anti-psychotics has settled lawsuits in the hundreds of millions of dollars. Anti-psychotics also garner the single most complaints for false claims. But as anti-psychotics are one of their top grossing category of drugs, pharmaceutical companies obviously consider them well worth it.
When weighing the risks of anti-psychotics for autism versus the benefits, it is difficult to see
the value. And from someone who was lead down the garden path of consenting to a Risperdal trial for my son with autism, my advice is to avoid them altogether.
Standing in stark contrast to anti-psychotics is low-dose naltrexone (LDN). LDN was pioneered by the neurologist Bernard Bihari in the early 1980s, when he was studying medications used for drug and alcohol withdrawal. Naltrexone is an opiate antagonist, which means that it blocks opioid receptors in the brain and thus eliminates the feeling of pleasure caused by the addictive substance.
But Bihari noticed that very small doses of naltrexone (initially 3 mg, a fraction of the normal dose of at least 50 mg) taken at bedtime only blocked the opioid receptors temporarily, which stimulated the body to produce more of its endogenous opioids,
while producing no significant side effects.
The diseases treated with LDN typically involve abnormally low levels of endorphins. Restoration of normal levels of endorphins by LDN have the effect of reducing pain and increasing mood, energy and an individual’s general sense of well-being.
Additionally, studies conducted by Dr. Jaak Panksepp of Washington State
University and Bowling Green State University have found that over half of
children with autism treated with LDN increased their social skills as a result.
Since 1985, low-dose naltrexone has been used “off-label” to treat a range of conditions sharing immunity dysfunction such as multiple sclerosis, Crohn’s disease, cancer, chronic fatigue syndrome,
fibromyalgia, irritable bowel syndrome, AIDS and autism.
LDN is currently not FDA approved because only pharmaceutical companies can afford the
multi-million costs of drug trials, and those companies are not interested in marketing a drug that costs only forty-dollars a month.
Dr. Jacqueline McCandless, famed autism expert, recommends LDN to her patients on the autism spectrum for immune system
modulation as well as social, cognitive, and language enhancement. Non-toxic, non-addictive, non-expensive, LDN can be taken orally or as a transdermal cream. Common side effects are initial sleeplessness and hyperactivity, which can be addressed by taking it just before bed in an already drowsy state or rubbing it into your
child’s skin as they sleep. In a small percentage of cases, children develop cold symptoms when beginning LDN, but
then recover quickly.
At a time when over 7 million children are on Ritalin and psychotropics, and Electroshock Therapy
is being promoted for wider use among youngsters on the spectrum, LDN is a ray of sunshine cutting through dark
clouds of medical treatments for autism.
I’m not impartial on the subject. My son has been using LDN for over a year now. Coupled with diet, supplements, and anti-inflammatory medicine, it
has sent his Crohn´s Disease into remission and markedly improved his symptoms of autism.
His physician, prescribed it for him through a compounding pharmacy.
A Google search will render LDN providers in your area.
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Once again, our nation has been rocked by another young adult conducting a murderous rampage that ends multiple lives, including his own. My heart sank when the shooter in the latest tragedy, Elliot Roger, was identified as having Asperger’s Syndrome (AS). Barely past Sandy Hook with Adam Lanza, and now this. Even with some news […]