It’s been a while since we posted an iPad apps for autism list, so here’s our 2012 version of some newer (and older) apps to consider for individuals with autism and other related disorders:
1) Shoe Tying 1 – Activity App – Teach your child to tie shoes in a fraction of the time with this video modeling program. This app breaks down shoe tying into individual video steps that children can learn in sequence format. With the aid of the Activity App Shoe Tying 1, you teach the student to tie a shoe off their foot and on a table top where it is easier for you to help. The student learns both the basic skill and the associated language. Once the student has mastered the skill table top, you then transition the skill to tying the shoe on the foot. Currently available for $4.99. http://itunes.apple.com/us/app/id514328778
2) Grace App – Grace is a digital version of the Picture Exchange Communications System, a book that helps those unable to speak to build sentences from relevant images. The app starts with 400 images that were chosen by non-verbal people as communication starters. For example, categories include colors, food and drink, my body, and places. Grace allows the users to build their “photo vocabulary” by snapping their own photos to use within the app. Grace is available for $24.99. http://itunes.apple.com/us/app/grace-picture-exchange-for/id360574688
3) The Social Express – The Social Express™ is engaging, educational software for children and young adults with social learning challenges. The software is designed to teach users how to think about and manage social situations, helping them to develop meaningful social relationships and succeed in life. Available for $89.99. http://itunes.apple.com/us/app/the-social-express/id477525808
4) Choiceworks – The Choiceworks app is a tool for helping children complete daily routines, understand & control their feelings and improve their waiting skills. It can also be customized for teachers in a school setting. It was created with the support of leading hospitals and child development specialists. Available for both iPhone and iPad. $14.99. http://itunes.apple.com/us/app/choiceworks/id486210964
5) Scene Speak - Creates visual scene displays for users. Personalized images can be uploaded to this app from your home computer or through an online image search. The images can then be resized and active “sound areas” can be added. The application allows both the number and size of the “sound areas” to be customized. Spoken messages can be added to the “sound areas” by using the Text-To-Speech feature, with one of five preloaded voices. Available for $9.99. http://itunes.apple.com/us/app/scene-speak/id420492342
6) TapSpeak Button – This app modernizes the idea of a mechanical switch that records and plays messages. The creators have taken the idea and extended it to provide a portable, convenient, and stigma-free tool to use for basic teaching and communication tasks. TapSpeak Button is especially useful for teaching cause and effect relationships. Available for $14.99. http://itunes.apple.com/us/app/tapspeak-button/id359998293
7) U-Sync Video Scheduler – The app contains a picture / video scheduler that is controlled wirelessly through the Internet by parents, special education teachers, and therapists, job coaches, adult service providers and others who support people with disabilities.
With U-Sync Video Scheduler, changing a user’s schedule is as simple as one mouse click. U-Sync allows caregivers to apply video modeling techniques to help users know what to do, how to do it and when to do it. Available for $19.99. http://itunes.apple.com/app/u-sync-video-scheduler/id496367156
8 ) Proloquo2Go – Provides a full-featured augmentative and alternative communication (AAC) solution for those who have difficulty speaking. It contains text-to-speech voices, up-to-date symbols, powerful automatic conjugations, a default vocabulary and much more. Proloquo2Go, available for iPhone and iPad at $189.99, is considered a good alternative against buying an expensive AAC device. http://itunes.apple.com/us/app/proloquo2go/id308368164
First there was Jason McElwain. Now, another young man with autism has taken to YouTube to show off some unique basketball skills.
In a recently uploaded 48-second video, 17-year-old Karl Garay can be seen spinning a basketball from the palm of his hand and then keeping it going using the same hand.
Garay’s father, who I’ve known for six years, told me the self-taught trick evolved from his son’s love of spinning and motion and began “out of nowhere.” The special talent has been an excellent icebreaker in social situations and also has been a great form of self-expression.
Diagnosed with autism at an early age, Karl has had communication difficulties much of his life, but this has not stopped him from pursuing the things he loves.
Once again, this video is a reminder that we should never place limitations or boundaries on those with autism. Each individual has their own set of talents and abilities and as parents, teachers or caregivers, it’s our responsibility to help unlock these gifts, allowing them to reach their fullest potential.
Donald Trump is a well-known celebrity entrepreneur who has never been afraid to speak his mind. Earlier this month, he decided to weigh in on the
autism-vaccine controversy on Fox & Friends, a weekday morning program on the Fox News Channel.
On Autism Awareness Day, Trump made his weekly appearance and was asked about the dramatic rise in cases of autism over the past several decades. The conversation quickly focused on the autism-vaccine debate, when Trump shared his "theory" that autism is caused by vaccinations.
He cited anecdotal evidence, including a family he knows who had a two-year-old child that had "lost it" one month after being
When challenged by host Gretchen Carlson that most physicians disagree with his theory, Trump admitted that his opinions were controversial,
but said he could care less what others thought.
Ironically, Trump’s opinions are in direct conflict with Autism Speaks’ official position on vaccinations, an organization he claims to support through various fundraisers.
While I applaud Mr. Trump for speaking out on behalf of parents who feel vaccines may have played a role in their children’s autism, his ignorance on this issue is painfully evident. As such, it’s probably best to let vaccine safety advocates who are better informed to address the media in the future.
April is Autism Awareness Month, so we thought it would be a good idea to
repost our autism symptoms checklist below. Some of this information may already be well known to many, but it wasn’t for us when our son was younger. He received a delayed diagnosis, mainly due to our ignorance about autism at the time. Had we come across a list like this sooner, we would have been able to provide much-needed intervention at an earlier age.
Remember that autism is a complex neurological condition, so it’s very important to consult with a licensed medical professional if you suspect you or a loved one may have the disorder.
Please Tweet, Share and +1 this info so others may have it available for current or future reference:
The severity, frequency, and grouping of the following symptoms will determine where (if at all) an individual will fall on the autism spectrum.
• Repetitive behaviors (may want to watch the same program over and
over again) • Unresponsive to commands or questions ("in their own
• Delayed speech & language development (non-verbal, especially by age 3)
• Lack of imitation of others or imaginative play
• Indifferent to the feelings of others
• Hypersensitivity to light & sound (covers ears when music is played or
covers eyes when going outside)
• Self-stimulatory behaviors (rocking, jumping up and down, hand flapping)
• Echolalia (Repetition or echoing of a word or phrase just spoken by another
• Unusual emotional responses (inappropriate laughing or crying)
• Frequent temper tantrums / meltdowns
• Responds adversely to physical affection, hugs, kisses, etc.
• Shows no interest in making friends
• Does not initiate conversation
• Very poor diet (may eat only starches)
• Frequently walks on tip-toes as a toddler
• Socially withdrawn or socially awkward
• Shows little expressive language
• Clumsiness (falls or trips often)
• Improper use of pronouns, statements, and questions
• Unusual tone or rhythm of speech
• Self Injurious Behavior (head banging, scratching/biting self)
• Frequently makes irrelevant remarks
• Difficulty with abstract language and concepts
• Preoccupied with one or only a few narrow interests
• Need for sameness (adheres to routines)
• Severe tantrums when routines are disrupted
• Shows an attachment to unusual objects such as car parts, branches, leaves,
• Fascination with spinning objects or spinning one’s self
• Very good at rote memory tasks such as repeating lists of items or facts
A new study released this past week has once again linked the consumption of processed foods to health complications, giving food safety advocates even more cause for concern. The April 10th publication of the Clinical Epigenetics Journal reported a link between high fructose corn syrup (HFCS) and autism in the United States. According to the study, the rise in autism rates "is not related to mercury exposure from fish, coal-fired power plants, thimerosal, or dental amalgam but instead to the consumption of HFCS.”
The study, led by former FDA toxicologist and whistleblower Renee Dufault, found that a deficiency of zinc, triggered by the consumption of HFCS and other processed foods, interferes with the body’s ability to eliminate toxins such as mercury and pesticides.
High fructose corn syrup has long been suspected of having an adverse impact on health and has been purportedly linked to obesity, cardiovascular disease, diabetes and liver disease. The fructose-laden ingredient has even been reported to facilitate the growth of cancer cells.
Dufault made news in 2009 with another study (which was referenced in these new findings), also linking high fructose corn syrup to mercury. Many HFCS proponents and some in the autism community will immediately (and predictively) discount these new findings, but regardless, they still warrant further research.
With autism rates now at a mind-blowing 1 in 88, there are many who are desperately looking for a definitive cause and a silver bullet theory. Whether or not there is something to these new findings remains to be seen, but we must not give up on our quest for the truth.
I wear a set of keys on a chain around my neck. I don’t know what, exactly, these keys unlock, but I wear them in hope, and in memory.
After my grandmother passed away years ago, my grandfather invited the women of the family to view her jewelry box and select any items that we would like to have. Grief-stricken though he was, he remembered (and honored) his beloved’s wish that her items be shared with the family.
At first, the jewelry seemed to consist entirely of gold pieces; I only wear silver. But then, a glimmering caught my eye, a flash of silver from the back of a drawer. Instinctively, I reached in, pulling out a small pair of silver keys. As I held them in my hand, I was intrigued by the mystery of what they might unlock, and the symbolism I saw within them. No one could tell me what they unlocked, but I knew what they represented: a perfect match, as my grandparents had been. Instead of questioning my fascination, I put them on a chain, forming a necklace that I’d wear every day for years.
In college, I wore them in hopes that I, too, might find my ‘perfect match’. Now, I wear them along with my wedding rings, as a statement of a dream realized. They make me think of my grandparents, who have both since passed away. I remember how my grandparents accepted and loved
my brother Willie, who has autism.
My grandparents were born in a time when many people with special needs were institutionalized and shut away from the world. (At least one family member from my grandparents’ generation openly questioned my parents as to why they hadn’t institutionalized Willie.) Yet my grandparents chose to open their hearts and welcome my brother into our family. Yes, they had to work through fear and face down societal prejudice to do so. But what I’ll always remember is the look my grandfather would get whenever he’d talk about my brother. Pride, compassion, and love would fill every line on his face.
Willie was – is – an integral part of our family. He has different needs, a different diet, and a different communication style. In some ways, Willie’s need for support makes him vulnerable. But his strengths are what my grandparents chose to celebrate. For example, whenever we’d gather as a family for Thanksgiving or Christmas or Easter, my parents and grandparents would turn to Willie, inviting him to ask the blessing. And whenever Willie prays, I think of how beautiful it is to be led by him.
I am hoping against hope that we will continue to ‘unlock the mystery’ of autism, that we will continue to celebrate and empower individuals on the autism spectrum. Moreover, I hope that we will allow ourselves to be changed – to let our relationships with people on the autism spectrum transform our thinking. As a society, we have made great steps forward when it comes to inclusion and autism. Even so, we have a long way to travel on the road of acceptance.
Our work is not yet finished – not while family members still suggest the isolation and exclusion of institutions as a viable option. Not while school systems and Medicaid programs cut wages, programs, and benefits for individuals, teachers, and caregivers. Not while people with autism lack opportunities for meaningful work. Medical and technological advances move us closer to unlocking the mysteries of autism, but will our hearts and minds also swing open to welcome people with special needs?
Many people have asked me about the keys I wear; they sense a story behind the necklace. And whenever I share that story – the story of two people who loved each other and accepted their grandson – I think about how, in making these everyday choices, my grandparents changed the world.
I’ll be wearing my keys this April, in honor of Autism Awareness Month. It may seem a simple thing, but there is significance in it. The keys call to mind both a sobering truth and an inspiring challenge: the world only changes one person at a time.
——- About the Author
Caroline McGraw is a would-be childhood paleontologist turned storyteller, digging for treasure in people with autism & intellectual disabilities (& empowering caregivers to do the same). Her younger brother, Willie, has autism, and she writes about finding meaning in your most challenging relationships at A Wish Come Clear. Her first book, Your Creed of Care: How To Dig For Treasure In People (Without Getting Buried Alive) is a guide for caregivers, free to all who elect to receive posts via email at:
The blogosphere has been abuzz the last few days about an emerging controversy involving the new "21 Jump Street" movie starring Jonah Hill, Channing Tatum and Ice Cube. The movie, set for release on Friday, March 16th, is being promoted by a YouTube trailer, which shows Ice Cube using the term "autistic" as an insult towards Jonah Hill’s character. After a detailed presentation from Hill on a bulletin board, Ice Cube mockingly states, "This chart looks like sh*t, are you autistic?"
What makes the comment so troubling is the insinuation that autism is characterized by individuals who are messy, unorganized and incoherent, and this couldn’t be further from the truth.
It’s unclear why it was decided to include this in the movie (let alone the trailer), but autism advocates are not at all amused and according to Examiner
writer Melissa Teodorovic, calls for a boycott have already begun.
Adding to the controversy, Holly Robinson Peete (of original 21 Jump Street fame) has a cameo role in the film and certainly can’t be pleased with these developments. Peete is the mother of a child with autism and a widely recognized autism advocate. She is the founder of the HollyRod Foundation and a board member for Autism Speaks. According to Teodorovic, Peete responded to the controversy via Twitter claiming the line was not in the original script and that autism should never be used as "a punchline."
In a final twist, Autism Awareness Month is only a few weeks away and "21 Jump Street" will still be in theatres at the time. Hopefully, Ice Cube, Jonah Hill, Channing Tatum, as well as the producers of the film, will take the time to educate themselves about autism before attempting to garner cheap laughs at the expense of those who have the disorder.
Today is day 271. This represents the number of days Ayn Van Dyk has been held by Canadian authorities and kept away from her family. It also represents how long one British Columbia father has suffered indescribable pain. We’ve covered this story extensively in the past, but for the benefit of our new readers, here’s the situation in a nutshell:
On June 16, 2011, Ayn Van Dyk, a ten-year-old girl with autism, was playing in her back yard. Derek Hoare briefly lost sight of his daughter after she scaled a 6-foot-high fence. Police were notified and after a several-hour search, Ayn was found playing safely in a nearby neighbor’s yard. If the story ended there, this would’ve been a happy ending to a terrifying ordeal. However, unbeknownst to Derek at the time, his nightmare had just begun.
Three days later, Canadian authorizes apprehended Ayn at school and she has been in State custody ever since. British Columbia’s Ministry of Children and Family Development (MCFD), who
is no stranger to controversy, claimed they were simply "lightening the load" of an "overwhelmed" single father of three. No charges of abuse or neglect were ever levied against Hoare and despite having two other children at home, MCFD only took away Ayn.
A few days after the seizure, Ayn was heavily medicated with powerful and dangerous antipsychotic drugs and has since been separated from her father and siblings. She is currently in foster care and Hoare has faced a painfully slow system marked by stonewalling, incompetence and
threats. His next court hearing doesn’t take place until the end of this year, with the earliest possible date of Ayn returning to her family being sometime in 2013. What makes matters worse, MCFD officials, at their discretion, can send Ayn back to her family at any time they see fit. This case has brought a lot of scrutiny from the media and one begins to wonder if Hoare’s outspokenness against the MCFD is now being repaid with delays and stonewalling as a form of punishment.
Last week, Hoare provided an update on another site. Here are some excerpts from that post:
"… as I am sure most would understand the last 8 ½ months have been beyond nightmarish. Tortuous does not begin to describe this either, the reality is that I have dedicated my life to my kids. I have dropped everything to ensure their happiness and development and to have this culminate in an attack by my own government, who has taken no time to understand my children or my family yet claim some authoritarian power over it is monstrous. To make matters worse this is being done under the guise of “help”. They throw around phrases like “child’s best interest” as if they empower them with some dictatorial aura, yet have no idea what those words even mean…
…We are now 8 ½ months in….. 263 days….. and my daughter has yet to see an autism expert….
….I have spent dozens and dozens of hours trying to explain the situation to them, trying to explain how to appropriately treat a child with autism, to try to get them to understand the concerning behaviours of autism and how it was this terrible mistake was made….
…Within the first six months Ayn had already had 4 different social workers, this fact has been used as a consistent excuse by MCFD who justifies their inaction and ignorance with a claim of “staffing issues”…
…..I am facing an escalating battle not an improving one, one which is taking place on many different fronts; my time on [Facebook] will be limited, my time in front of cameras or in print will be on the rise, and the time I need to spend studying will also continue to be pressed only to the limits of my fatigue. I ask for everyone’s help spreading the word about this and keeping up a dialog on how it is we got to this point and what we can do to inform others of what is happening, not simply in regards to Ayn, but to the “child protection system” which has strayed so far from its goal to now become an imposing threat to the safety of children and not the heroic saviour they would like to cast themselves to be. If the populace knew how this worked it would not be tolerated, and in fact will serve as a clear exemplification of why the granting of such powers under blanket liability protections is a terrible and dangerous thing…
….Her name is Ayn… she has hopes, dreams, fears and loves…. I am one of them and I will not let her down."
Per Derek’s request, we are asking our readers to share, tweet and +1 this story as much as possible to help get it further circulated. I hold hope that our society has not become apathetic to the point where we ignore stories involving governments arbitrarily removing children from their homes without due process.
Please take the time to care and share. The next time, it could be your own child.
The Dan Marino Foundation, a fixture in South Florida since 1992, has recently announced plans to start a college for those with autism and other
special needs. According to a Fort Lauderdale Sun Sentinel article published last month, the school will be the first-of-its-kind in Florida and assist those with autism, Down syndrome, cerebral palsy and other related disorders.
With building space already purchased in downtown Fort Lauderdale, The Dan Marino Foundation Florida Vocational College will cater to students, ages 18 to 28, and open its doors in the fall of 2013.
As a resident of South Florida, this is certainly heartening news and will be a great addition to the community. The Dan Marino Foundation has maintained a great reputation over the years and was launched shortly after Marino’s son was diagnosed with autism at 2-years-old. The Dan Marino Center, which is part of the larger Foundation, holds special significance to me personally — it’s where my son was first diagnosed with autism back in 2005.
As for Marino’s son, he’s since graduated from college himself and is currently working as a DJ in Florida. Despite having many challenges at an early age, he’s been able to far exceed expectations that were made for him at the time of his diagnosis nearly twenty years ago.
For more info about the new school, you can read the full article here.
In 2010, actress and talk show host Holly Robinson Peete competed in Donald Trump’s hit reality show Celebrity Apprentice, where she placed second behind Poison lead singer Bret Michaels. As part of the season finale, Michaels and Peete were tasked to create and market a new drink flavor for Snapple. Peete, a mother of a child with autism, helped formulate Snapple’s Compassionberry Tea, with proceeds benefiting the HollyRod Foundation, an organization she and her husband founded that assists individuals and families affected by autism and Parkinson’s.
As we reported last year, Snapple disappointed many autism advocates (including Peete herself) by pulling the Compassionberry Tea from store shelves just one month before April’s Autism Awareness Month. Now, a year later, many autism advocates are hoping the drink will make a return in time for next month.
Peete, along with a host of other autism advocates, began tweeting this week, drawing attention back to the drink and its cause. Here’s a small sample of those requests:
It’s still unclear why Snapple pulled the Compassionberry flavor last year, but some have speculated that it was strictly a business decision and not related to the demand or likeability of the beverage itself. In fact, an Autism Key reader made the following comment from our previous story:
"I think it’s pretty obvious what’s going on here…There are many flavors of Snapple that don’t taste very good, but Snapple doesn’t have to split the profits with a charitable organization. I think they should cancel one of their other existing flavors and keep Compassionberry
It should be noted that after nearly two years, Bret Michael’s Trop-A-Rocka flavor is still listed on Snapple’s Web site and presumably still in stores.
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Autism strikes a family’s heart, soul and wallet. Estimates by The Autism Society puts a lifetime of care for an autistic child at $3.2 million. Autism parents know firsthand the brutal toll to the family coffers of therapies that can run $40,000 to $50,00 per year. Families tangle with insurance companies, invariably ending up with […]