Leslie
(New Member)
12/11/06 01:43 PM
Re: Hello!

Jean,
I really thought I was over alot of that by now. We have lived with this for 9 years. But, I don't think I will ever really get over the guilt, anger, and helpless feeling.

When my son was first diagnosed we were told "he would never be able to communicate or live on his own". I just could not accept that. We searched and searched for a program in our area that would give him something because there is no clear direction (I think that is what makes me soo angry). We ended up finding a program that we use some state funding and pay some out of pocket but it was 1.5 hours away (one way). But, we did it anyway... I worked full time took a 2 hour lunch everyday and took him to school and went back to work to finish my 8 hour day. He would tantrum so bad (biting, kicking, screaming).

I read through this post and my heart goes out to each of you. It is a real rough life. I try to stay positive but I guess it really depends on how my son is acting that day.

Leslie



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