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General Discussion >> Best and Worst States for Autism Services

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New Member

Reged: 05/19/07
Posts: 5
Loc: North Carolina
North Carolina
      #689 - 03/11/08 03:41 AM

I currently reside in North Carolina, having relocated here from NYC three years ago, and we STILL do not have any services for our child.

Navigating the bureaucratic maze here has been exhausting and the nonsense that we have to go through is simply amazing, add to that the professionals' policy of treating parents as nuisances they have to put up with emitting the attitude of "shut up, do what we tell you to do and sign the papers we tell you to sign."

God forbid that a parent have any knowledge of special education law and policy because then you are treated as a know-it-all problem parent. They have revised to system here to operate similar to HMOs, where the responsibilities of state agencies have been transferred to what constitutes mom and pop service shops - anyone can hang up a shingle and state that they offer "Targeted Case Management;" when I called one of those places I actually had to explain to the case manager what autism was, she thought it was a learning disability (good grief).

There is absolutely no funding for anything, and if there is, the waiting list for it is atrocious, and according to the project director, the people who received funding this year were placed on the waiting list at least five years ago, "so your three year wait means nothing, dear."

I never thought that I would say this but I much prefer the system in New York City because at least they have a reputation of treating the mental health community with respect, and do not simply attempt to treat a diagnosis but incorporate the family unit as a whole into the child's treatment plans in recognition of the fact that the nature and extent of the child's disability impacts the entire family.

They also offer services from ages 0-99 and do not go through a whole convoluted process of seeing if a child with autism will be eligible for the negligible amount of services that they do provide as they do here in North Carolina, but instead treat a diagnosis of autism as an automatic slam dunk approval for services.

At any rate, after experiencing what I believe to be explicit maltreatment by the bureaucracies in North Carolina for three years, I am ready to go elsewhere postehaste...any suggestions regarding a possible relocation state from anyone would be most appreciated at this time. Thank you.

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New Member

Reged: 12/30/08
Posts: 3
Loc: NC
Re: North Carolina [Re: p10030]
      #864 - 12/30/08 09:31 PM

I live in nc and know what you mean my son has been on waiting list for at least 4 yrs and still waiting. He does receive speech and ot therapies but as for any other services we are still waiting.

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New Member

Reged: 10/01/09
Posts: 2
Re: North Carolina [Re: autismmom2967]
      #1013 - 10/01/09 11:01 PM

If you are in the Triangle there is a new school that uses medicaid to provide services through therapists so the school never doesn't recomend something- Jordan Lake School of the Arts in Apex. www.jordanlakesa.com

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