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Treatments & Therapies >> Gluten Free Casein Free Diet (GFCF)

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Ben Fiengold and the Feingold Diet
      #72 - 01/02/06 04:02 AM

My step son has AS, I was wanting to get imformation on the Feingold Diet. I really want to help him and believe this is a good place to start.

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Re: Ben Fiengold and the Feingold Diet [Re: Anonymous]
      #73 - 01/02/06 09:15 AM

The Feingold Diet addresses other conidtions such as hyperactivity, ADD, and salicylate sensitivity (and of course autism spectrum disorders).

The Gluten Casein Free Diet I feel is more autism specific so you'll probably see more success with that if your stepson responds favorably to dietary intervention. The basic Feingold diet does not call for the elimination of gluten and casein. However, it doesn't hurt to try and follow the basic guidelines for both diets.

I have the blue Feingold book.......it's a good resource to have and you can get it by becoming a member at www.feingold.org

In a nutshell, the diet is based upon an "elimination" of foods in several stages.

Stage One includes the elimination of synthetic/artificial coloring, avoiding any foods with dyes (Yellow No. 5, etc)
Also it calls for the removal of synthetic flavors typically listed as "artificial flavoring" on packages.

Additionally, the preservatives BHA, BHT, TBHQ, & Aspartame need to be avoided.

Finally, natural salicylates need to be avoided. These are included in many vegetables, juices, etc (The blue book lists them all).

Stage one is followed by a period of time, then Stage Two begins. It's too detailed to list here, but this should give you an idea. What I like about the book is that it lists all the unacceptable and acceptable foods so you know exactly what to avoid.

Hope this helps..........good luck!

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Re: Ben Fiengold and the Feingold Diet [Re: Anonymous]
      #164 - 06/16/06 07:23 PM

I agree that anyone with ASD should try a diet free of gluten, casein, AND soy as the first treatment. Harumi Jyanouchi's study showed 91% (yes, 91%!!) of kids wiht autism got inflammation responses in their brains from those 3 ingredients. If you have not tried eliminating these foods from the child's diet yet, that would be my reccommended first step. My son became potty trained, his constipation stopped, he began sleeping all night and he stopped flapping his hands and staring at spinning objects when I put him on the diet.

For more info on Feingold-like stuff, you don't have to buy their program, you can get very good info on phenols and salicilates at Dana's View. Go to google, search this exact phrase "dana's view phenols". My son had behavior ups and downs- hyperactivity, agression, etc and that completely stopped when I FURTHER removed all high phenol and Salicilate foods form his diet. Apples, berries, corn syrup, and food colorings were 3 of the very worst offenders. I can re-test my theory any day- it just takes about 1/2 cuup of berries and the dark circles will return to his eyes, his ears will turn red, and his humming will return- or aggression, or both. Interesting note- many of these phenol sensitive kids can NOT tolerate B-6 either (like my son).

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Reged: 06/11/06
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Re: Ben Fiengold and the Feingold Diet [Re: Anonymous]
      #219 - 08/08/06 09:57 PM

We are GF/CF, soy free, sugar free, nut free, poultry free, and anything else free except: organic and non processed fresh fruits, select vegetables, and lamb. And still for our 3 year old we found very similar results with regard to phenol sensitivity. We haven't had the problem though with B-6 however, I will now watch for it... What I wanted to mention was the use of No-Phenol by Houston's http://www.houstonni.com/ it has made things much better for us. In fact that is how we figured it out (ran out of the enzymes tracked back to what changed) He has to take the enzymes with each phenol food (sprinkled on top) but he doesn't seem to mind.. With Ryan's diet being so limited we needed an option, mainly for his carrot juice that is used to dissolve his supplements.
Oh yeah the tell-tale sign for Ryan is a red spot above his lip!!! (he is NEG to all HSV) It will appear and then with the enzymes dissapear... also his strange behavior and stimming is hard to miss!! The behavior takes longer to disappear then the lip thing... usually about 24 hours post non-enzyme phenol exposure.

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Re: Ben Fiengold and the Feingold Diet [Re: Annette]
      #448 - 04/24/07 10:52 AM

My twins are nearly recovered from Feingold GFCF diet. We are soon to be soy free as well. I know it's hard but my kids are attending normal kindergarten now, no more OT. Very small IEP just for social skills. I recommend it very strongly.
See www.Howtostartgfcf.com

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Re: Ben Fiengold and the Feingold Diet [Re: twinmom4321]
      #5310 - 04/14/11 03:11 PM

That is amazing Twinmom! I have a parent getting ready to start dietary supplements and a gluten-free diet with her teenage son. She's really hoping a dietary intervention will have positive effects. How long did you have to wait before you saw positive results with your twins?

"It is only when we forget all our learning that we begin to know." -Thoreu

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