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Disorders & Conditions >> Classic Autism (13-17 years old)

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Tiffers
New Member


Reged: 04/09/07
Posts: 4
Parents of teens with disabilities (xposted)
      #431 - 04/09/07 02:32 PM

(This subject applies to a few of the forum sections, so sorry for the multiple crossposts)

Hi there! I am currently working on my degree in Special Education and I need your help! I am writing a paper on transition services in high schools and I would love to hear what you all have to say about them.
If you wouldn't mind, could you please answer a couple questions for me? Then, of course, feel free to add anything else that you would like to share with me.

What type of disability does your child have?
How old is your child?

How are you planning for the transition of your child into the community, work situation, or post-secondary setting, and family life?

How successful do you think transition planning is for students with disabilities?

How are students with disabilities included into the regular education program at your child's school?

How is the curriculum for children with disabilities orgranized at your child's school? Are the students there involved in functionally-based curriculum.

Thank you, so much, in advance. I really appriciate any input you can give me!


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sadie
New Member


Reged: 03/12/08
Posts: 5
Re: Parents of teens with disabilities (xposted) [Re: Tiffers]
      #691 - 03/13/08 12:23 PM

Hi there I live in Brownsburg,Indiana. My son is 14 and has Asberger's autism. We moved last fall from Indy and the difference in school programs is huge! They did a full blown evaluation for Speech,OT,& PT amoung varies psych evals. He was getting all the necessary therapies and modifications. The class work and "ISTEP" amoung social issues was too much for him. He was destined for failure so the school transferred him to a "non-diploma" track setting. The children have varies disabilities and learn things like "life Skills". My son got to interview (at school) for a job in the cafeteria which he works 50 minutes. He was also paired up w/ one of the custodians for mentoring. Now for the bad news.... my son was expelled from this program due to behavior. He had a fit of rage and could not be calmed down. The school unfortunately had to call the police. (the principal talked to me and was very sympathetic) I had "Manifestation Determination Conference" in whch they are recommending he be sent to a "Behavioral" school which they will be paying for. My problem with this is that he will pick up more negative behaviors. I know that he will also get expelled from this school as well. The next step advised by my Crisis counsler is the "residential" program. This is what I feel he trully needs. My son is 5"10 and weighs 276lbs. He is a huge kid and with all that rage I'm afraid he will hurt someone and go to prison. I also waited to long to try for Medicaid waiver. My son was 8 when he was diagnosed w/ PDD spectrum. I was not prepared for the undertaking of raising a child w/this disorder. I always just assumed that he would live w/ me always. The waiting list for the Medicaid waiver is unfortunately 8 years. ( I just applied las month!) Also in the state of Indiana the trend of politicans was to close the "state-run" institutions. THese folks had 1st priority (and rightly so) on the residential homes so the waiting list will get longer. Had JOrdan not been expelled I believe Brownsburg school would of continued his training and prepared him and assisted him in getting job placement. Over-all I'm impressed w/ Brownsburg's committment to services children w/special needs. also a side note the school had me fill out a form for the local police to register him as a person w/autism. (they know us well!)One fo the police officers lives in my apartment community and will come over to assist when we need help) I hope this helps you in your report. I know I have rambled on alot:)

Sincerely,
Sadie
Brownsburg,IN


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melissa
New Member


Reged: 03/30/08
Posts: 2
Re: Parents of teens with disabilities (xposted) [Re: sadie]
      #706 - 03/30/08 02:32 AM

Dear Sadie:
I am so sorry to hear about your son. My son also has Asperber's but is pretty high functioning because I started working with him when he was three. He is mainstreamed in school but still has meltdowns at home and it causes him extreme dismay. He also has extreme scoliosis and has to have major surgery with a year of recovery. I just went through a divorce and got no alimony, I cannot get any state aid for his asperger's or respite care for when he has the surgery, and his father is not around. With my disability it makes it very difficult but I was turned down for aid as they said "I was making it up" despite the medical records. Please give me any feedback as to where I can go next for help. I have done all his tutoring, behavioral treatment, etc. I am getting burned out. There is no family here and all my friends are in another town.
Melissa


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sadie
New Member


Reged: 03/12/08
Posts: 5
Re: Parents of teens with disabilities (xposted) [Re: melissa]
      #728 - 04/22/08 05:18 PM

Hi Melissa,

Sorry I'm late getting back to you. What state do you live in? Is your son on Medicaid? I live in Indiana and things are really slow here in regards to children w/autism. I was lucky in that My Mom got an apt in Brownsburg and took Temp custody of my son so that we could get him in a better school. Under her income my son qualified for Medicaid so all his meds and services are covered. I had private insurance but services were either not covered or I was stuck in the HMO doctor network. I have worked w/ a couple of non for profit agency that have helped me navigate the "red tape" for getting aid. I'm positive that in your situation the state / school has to provide services for your son. Thanks for responding to my email and please let me know what State and area you live in. -Sadie


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