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sydney_02
New Member


Reged: 02/09/08
Posts: 3
Loc: Veneta, Or. USA
Autism & Craniosynostosis
      #668 - 02/09/08 07:55 PM

Hi I am new here.
I was wondering if anyone has had a child that had ever be diagnosed with autism/pdd and craniosynostosis.
My daughter--5yrs now has metopic cranio; she had surgery at 16 mons. She now has or always has had SI dysfunction. She had to go through speech therapy and occupational therapy after the surgery. Her speech took off-with some eating problems though---which she still has. She is very smart for her age. She is still in preschool--but in a Early Education Program preschool. I wonder if she has some other issues though. She hasn't been diagnosed with autism or PDD --but wondering if her behaviour changes can be from that. We need some answers. We are new here in Oregon, origanally from Southern Cal. In Cal. she only recieved help from EI until she was 3yrs. Here she will recieve help until she is in Kindergaten.
Thanks for listening.
Christina--

--------------------
Christina Hahn


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shellyann
New Member


Reged: 02/04/08
Posts: 7
Loc: Ohio
Re: Autism & Craniosynostosis [Re: sydney_02]
      #669 - 02/11/08 09:34 AM

hello Christina; My name is Shellyann. We are new too. When you talk about autism; you are really getting into a different subject. What are a couple examples? Do you feel/believe she is in a fantasy world? Does she have an over active imagination? These are just a couple things that relate to autism! With our son he flies with his hands and makes sounds,like jets flying.We are in the same corner as you! Don't have no-answers! Please read our story. We are also open to any suggestions! As far as the eatting; Maybe try offering little amounts 5-6 times a day. Let her make tomorrows food list. This way she feels more in control. Then you can add a few things you want her to eat. Make flash cards of different foods; This will help! have you tried any of these things? We hope all works out well! Shellyann Keep a smile on your face!!

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sydney_02
New Member


Reged: 02/09/08
Posts: 3
Loc: Veneta, Or. USA
Re: Autism & Craniosynostosis [Re: shellyann]
      #673 - 02/17/08 11:23 PM

Hi Shellyann-
Sorry I am just getting back to you. Been busy with things around the house as well as my kids. To say she is autistic I am not sure. She has some really unual things she does. Yes she has a very active imagination. She is also very overly affectionate. Mainly with me. Kissing me and climbing all over me. She does thins alot in piblic. It has been getting harder and harder to go shopping with her.
She is like a sponge when it come to acedemics--things that her brother and sister are learning. She has her life in control when she is at preschool. And no matter how much I can try to run my home in an orderly matter, we still have problems.
She is not potty trained yet. She has good days and bad days. She has a hard times with planes flying over. She can't stand it when the TV gets turned to the wrong channel--the black and white--polor bears in a snow storm, hope you understand. Well, there is other things too.
I was still wondering if because she had the cranio, maybe they could have something to do with each other.

Sorry so long, thanks for responding--
Take care and God bless,
Christina

--------------------
Christina Hahn


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shellyann
New Member


Reged: 02/04/08
Posts: 7
Loc: Ohio
Re: Autism & Craniosynostosis [Re: sydney_02]
      #675 - 02/18/08 12:00 PM

Hello Christina: Thats fine "I hear u". I am hearing what you are saying! '?' How is she at recess, gym,free time when its loud?(at preschool?). Is it the black and white or, the noise! Our son does 'not' do loud well at all. Home or anywhere else! This could be the issue at the stores too. Just play with it and see how it goes! Try turning up the sterio or clang pots and pans.. This will help you if this is the problem. We have to leave the store or what ever/where ever we are if loudness occurs. Let me know! We know this is hard sometimes. Shellyann

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sydney_02
New Member


Reged: 02/09/08
Posts: 3
Loc: Veneta, Or. USA
Re: Autism & Craniosynostosis [Re: shellyann]
      #676 - 02/18/08 07:41 PM

It is too loud at my sons basketball games. The minute we get there--she wants to leave. I think it is the noise. It is loud. The store it is just so simulating for her now. She used to be ok, but things have been changing with her these last few months. Be behaviour and such. I have notice that her head is changing shape too. By the temple---eye. She has had some complaints of headaches too.
We do have a behavourist specialist coming over tomorrow--tues/19th to go over some of these things that we have be dealing with. So maybe we will get some answers from there. Thanks for your ears--
Christina

--------------------
Christina Hahn


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